Exertional Rhabdomyolysis
Why is there so little medical literature and/or support after hospitalization for Rhabdomyolysis? Is there any tracking of number of cases per year in the United States? The focus understandably seems to be on acute renal failure but after discharge the advice centers mainly on hydration and rest. I got Rhabdo in 2008 from lifting weights with a trainer. Was fit but hadn't been in the gym for awhile. CK 66,000 with myoglobin. Extreme swelling of thighs and could hardly walk. Four days in CCU.No renal damage. No real guidance after discharge. 2nd Rhabdo 2021 after hiking down the Waipio Valley, Hawaii. An average grade of 25% and peak grade 45%. Eccentric movement is a Rhabdo trigger. This time, I have been very proactive in seeking medical support and learning all I can. My recovery has been very slow. Now have exercise intolerance, muscle stiffness etc. I can not exercise at prior level. I am seeing neuormuscular Dr. and genetic specialist. Physical therapy. I have recently been accepted to the rare disease clinic. I also wonder why there isn't a testing protocol in the hospital for admitted pts. with recurrent exertional rhabdomyolysis that goes beyond renal and electrolyte support?? (Carnitine and Acylcarnitine Test?) I had an acylcarnitine profile months after and had elevated C6 and C10. Then tested heterozygous for MCADD. Now digging deeper for a novel mutation to see if I am compound heterozygous and displaying a milder form of disease. Also carnitine deficient. So supplementing. No coconut or palm oil for me. My other question is why isn't a knowledge of Rhabdomyolysis a requirement for athletic trainer certification? Recently joined a gym again and not one of the trainers or the director had any knowledge of Rhabdo. Mind boggling considering that Rhabdo in the extreme can result in having to have a kidney transplant or death. Ironically, I was doing my post grad work in the O.R. at UCSF in the early 80s and spent time in the kidney transplant room. When I got Rhabdo the first time, I too, had never heard of it. I really hope to see a conversation about Rhabdo in-depth as you are reaching and inspiring so many people to start moving and exercising for better and more optimal health. I so appreciate your work and its impact. I listen while I'm on the bike. My concern is for the people who are listening who have never been to the gym or are new to the work out world or are just coming back and are at higher risk for Rhabdo. Also would like people in general to know more about this condition so they will listen to their bodies and be safe and seek medical help expediently if they have Rhabdo symptoms. Thanks again for the excellent work and efforts that you and your team do to help others.
Atrial Fibrillation after mRNA Vaccine
Hi Peter! I would like to get your opinion on the possible link between AF and the mRNA vaccine. I would also like to know what advice you have for someone with AF in terms of managing the problem. I really enjoy listening to your wonderful discussions on health and well-being. Thank you for your work.
Autoimmune disease
Could you do a program on autoimmune diseases, specifically those in the gut? I am interested in learning more about the molecular immunology around celiac, crohn’s and other gut diseases and how future treatments such as micro biome manipulation and use of T suppressor cells may impact them and then how to maintain exercise and proper diet with that background. Thank you!!